Hi, I’m Karen, Alex’s mum.
Alex is 12 years old and suffered HIE (Hypoxic Ischaemic Encephalopathy) or oxygen starvation at birth. He has quadriplegic cerebral palsy, epilepsy, learning difficulties and is fed through a tube in his tummy. He has had to have emergency bowel surgery and hip and hand reconstructive surgery.
Shortly after Alex’s birth, the doctors warned Alex’s dad and I that it would be very unlikely that Alex would ever talk, eat, sit or walk and that there was no cure - this is difficult to comprehend and devastating.
However, over the years, Alex has continually surprised me, his dad, his doctors and physios by the things that he has been able to do and achieve, that we were told would not be possible.
With the help and support of Rainbow House where Alex has been able to have conductive education, he has learnt to drink and eat a little; to hold his head up; to sit briefly on his own; to take a few steps in his walker (which he loves); and pedal his own trike. All of which has totally amazed his neurologist.
Alex has recently raised £2500.00 for Rainbow House by doing a sponsored 2-mile trike ride and over the summer he has been surfing with Surfability UK.
Alex is a mischievous little boy and enjoys doing all of the things that every other 12 year old enjoys. This video perfectly capture his personality and how much he enjoys proving us all wrong https://vimeo.com/knightsplc/review/291693342/fa2c802505
If there was one piece of advice that I would give to other parents whose child is diagnosed with or living with cerebral palsy it is that you’re not alone, try and find local and social media groups where you can get help, advice or just have a moan! And remember, never say never ... your child will always surprise you with what they will achieve!